Beginnings of Story
Texte du Storyboard
- My name is Janese. I am a married woman and my husband, and I's anniversary is coming soon. Not many in my family get married before children and, coming from a small rural town in Alabama, I have done everything right.
- However, my history has affected me more than you can see on the exterior. My life is much different behind closed doors.I will come to find how planting myself in certain roles or schemas that I think seem healthy can actually take me farther from health.
- Even though my mother and father died while I was young, I was raised by a strong, resilient family that produced highly educated professionals from a 2 room shack
- But being raised by my grandparents meant that I lost my second pair of parents soon after the first. I sought love and unity in a region and community that often relies upon habits such as excessive drug and food intake as ways to take refuge and find community.
- “You are experiencing congestive heart failure… you should not try to have any other children at this time”
- I plan to follow those recommendations.
- I also experience food insecurity, domestic abuse, anxiety, housing insecurity, and depression. My husband is essentially demanding another child because he wants a son…
- I would grow to develop chronic illnesses. Some that left physical markers my doctors could see. Others, again, were undetectable.
- You should divorce him if he hurts you and takes your paychecks, you should get a hysterectomy, do not have another baby for him and put yourself at so much risk. You must act now before it is too late. You need a heart transplant, do not drive your time on earth short.
- I am already pregnant.
- Everyone shared what actions I should take to improve my situation, never mentioning my panic attacks and the therapy and hospice options that were available after I had my second child and was placed on the heart transplant list. No one helped me find services and get consulted through a divorce and through the mental anguish I experienced during a 13-year span.
- I tried to lose weight for the impending process, and did
- The space on the waitlist could not come in time.I died still married to the same man and struggling to ask for help in ways that got through to my truly caring family. People with similar stories that are still living can be saved. Heart failure is why I died, but lack of medical support, advocacy, health education, and mental health services is what made the need for an organ transplant seem so small in the larger picture of my story. My children live on, and I believe their own struggles through this will prove that resilience still is a large part of our bloodlines' composition.
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