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  • Slide: 1
  • Are you okay?
  • I don’t feel so good... my chest hurts.
  • some thing is wrong with jamie.
  • Slide: 2
  • The child is suffering from a genetic disease called thalassemia.
  • Dad
  • Doctor, what happened to jamie?
  • An inherited blood disorder.
  • Slide: 3
  • but it's good that you're asking these questions now. Let’s break it down.
  • Let’s break it down. Physically, Thalassemia means your child’s body struggles to make enough healthy red blood cells. This leads to anemia, so they may feel tired, weak, or have trouble keeping up with physical activities, like running or playing for long periods.
  • Emotionally, it’s important to understand that your child might feel frustrated or even sad because they can’t do everything their peers do. They might not always understand why their energy levels are different or why they need treatments. As they get older, they may feel the weight of needing frequent medical care and the responsibility of managing their health.
  • Slide: 0
  • I love playing with my friends!
  • What happened?
  • A type of G.D that reduces the amount of hemoglobin in their red blood cells.
  • How is this going to affect jamie?
  • That sounds difficult. What about emotionally? I don’t want them to feel isolated or different from other kids.
  • That’s why it’s important to provide emotional support and to be there to talk through these feelings.
  • So, it’s not just about the physical challenges, but the emotional burden, too.
  • That’s why it’s important to provide emotional support and to be there to talk through these feelings.
  • It can be hard. They may feel different during medical appointments or physical activities. But with good support and understanding friends, they can still make meaningful connections.
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