HCM report

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  • Hi, I´m Charlotte. I work at the community resource center and I will be showing you resources in the community for people diagnosed with HCM!
  • Here is the Hypertrophic Cardiomyopathy Center at Stanford Health Care. It´s exact location is 300 Pastuer Drive, 2nd Floor, Room A260, Stanford, CA 94305.
  • Here is a closer look inside the center. On its website, it says they provide ¨world class care for Hypertrophic Cardiomyopathy¨.
  • In addition, their services include genetic counseling, patients being monitered by Cardiologists, treatments like ICD, alcohol septal ablation, pacemaker, myectomy/myotomy and medication.
  • This is one of their esteemed genetic counselors, Zoe.
  • Hi! If you ever need anyone to talk to about your HCM condition, call us 650-736-7878!
  • It´s purpose is to educate, provide support and advocacy to patients, families, and the public about HCM. In addition, it also help support research of treatments for HCM. It´s services are to educate people about HCM through membership meetings or online ones and to provide support through HCMA meetings. To contact them, dial 1-973-983-7429 or email support@4hcm.org
  • Unfortunately, there are no local support groups for HCM, but there is an online one called Hypertrophic Cardiomyopathy Association (HCMA).
  • HCMA
  • Unfortunately, there are no national foundations that provide grants or other support. There are also no local businesses that provide financial support. People should continue to raise awareness for HCM so diagnosed people can get support.
  • There are no special schools or programs that a child with HCM needs to attend because HCM does not affect learning ability or intelligence. However, during PE, parents should let the teacher know about the child´s condition and the child should be allowed to limit their exercise.
  • And this concludes our community resources, I hope you find this helpful!
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