This is bennu he is a dwarf he suffers from a crippled spin and small legs and arms so he is always in some sort of pain.
"One day a very old and wise scientist comes to the town where bennu lives with his family.It is not by chance that this famous doctor has arrived. He is looking for Bennu. He believes he has found a cure for dwarfism.''(page 92)
"Your son won't be short anymore, the doctor tells everyone.But we don't want everyone to be the same, do we? (page 103)
"Bennu can hardly imagine what life would be like as a normal sized person.His parents,surprisingly,are not pressuring their son. Bennu's father tells him the decision is his to make. It's your life Bennu, no matter what your life,Bennu. Your body.We love you,Bennu,no matter what your size,no matter what your limitations."(page 130)