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  • Scene #7
  • Identity dismantled. Vague diagnosis. Uncertain treatment. Gloomy prognosis. Massive career uncertainty. Feel insecure. Extravert is "trapped" in the house without energy for old ways of work and fun. Bruised ego as I become more dependent and less independence. Daily mini-crashes, try to avoid major-crashes.
  • Scene #8
  • Haven't fully accepted prognosis. Keeping positive outlook is key and challenging. I try hard to maintain optimism, positive expectation, and grateful for little things.
  • Scene #9
  • It's a good day. I did my activities of daily living, and have some energy to visit. I'm a bit concerned about crashing afterwards, but I've been good about setting time-limits.
  • Hey sorry, I keep cancelling plans last minute.
  • Ok. I understand.
  • ME/CFS is isolating, visitors are a rare treat, & patients prepare energy-wise in hopeful anticipation.
  • Can I join you in meditating, stretching, NLP, EFT, etc.?
  • Oh yes! I'd love a "neuro" gym buddy.
  • But you used to do 'x' [comparing] Just go do 'x.' [dictating, doesn't understand PEM]
  • "Comparison is the thief of joy." - T. Roosevelt When I'm out feeling good, it hurts to be reminded of my disability.
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