Gina's Story has provided a first hand experience of what it is like to have a child with a severe disability. In the hospital room when Gina was born, her mother made the decision to  understand this disability. She asked any question she could and quickly educated herself on what her child's disease; Smith- Lemli-Optiz syndrome is. The doctors warned her against researching it  however, she felt it was her duty to do so in order to prepare herself  for what was to come.  She wanted to be the best  parent possible and provide Gina with the opportunity to live a good life.
Gina's mother tackled the disability head on and was able to relate that to her daughters early foundations. She was a teacher and received a Masters  in education. She took this education to the next level after finding out her child had a severe disability and earned a Special Education degree as well. It was through this education that Gina's mother was able to find out what her daughter might need past the realm of education, what would be provided in this realm and what supports she could get to help with her disabilities.
The question then becomes how do I as a teacher help the average parent share their voice when it comes to their child's disabilities or special needs?
There are many ways I as a teacher can help parents share their voice. One method I would apply is holding meetings with multiple families at times and places that can work with everyone.  It is important for parents to express themselves during these meetings and mention the changes that must be brought forth to better suit their children. In these meetings they should feel safe in a supportive community with professionals who want to help. 
Another way I can help parents share their voice is by communicating with families on a regular basis. This does not mean only communicating with parents when there is a problem. It is important I am aware and communicating with them at all times.A third way I can help parents have a voice is to develop trust and respect. If this is present, parents will not hesitate to reach out to me. Upon understanding their needs I can refer them to the necessary resources.
A fourth way I can help parents have a voice is by inviting community leaders to get involved. Community leaders  have a lot of power to produce change through their popularity. If there are any families who think their children are among the silent few and need help getting exposure to issues their children are facing, community leaders will be able to help advocate and bring forth change.
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