The CASTLE Study Information Sheet for Children Trial and Interviews, 5-8 years v1. 05/10/2018. These children have some questions you might also have. Please look through this sheet with your grown-up(s), to see what they find out about the study.
What's all this about?
We are Bernie and Heather. We are researchers.
We want to find out what you think about being in the CASTLE study
We want to know about how you feel about having epilepsy
You won't miss your school times or other times that are important to you.
We will have 3 short talks. We will ask you some questions
We may ask you do some games or drawings to help you think about what you want to say.You can bring pictures or writing you've done at home to show us.
So what will happen?
We can talk face-to-face, through the computer or on the phone. You can choose.
Where will we talk? Can my grown up be with me?
You can talk to us with your grown-up(s) or on your own, if that's what you'd like.
What will happen to the things I say?
We won't tell anyone what you said. We will only tell other people if we are worried about how you are feeling.
We will record your voice when we talk to you and type up what you said.
Do I have to talk to Heather or Bernie?
What happens if I want to stop talking?
We can take a break, talk another day or stop forever.
Just tell us what you'd like to do.
No! If you don't want to talk to us that is OK. Just tell us.
If you want to stop tell us at any time.
At the end we will say thank you and give you a certificate.
Who can I talk to if I have any more questions about this study?
You can ask to talk to Heather or Bernie about anything, at any time?
a) ask your grown-up to call or text us on: XXX b) email us at firstname.lastname@example.org or email@example.com c) look at our website www.castlestudy.org