Findings 2

Findings 2

Storyboard Text

  • It's so difficult to sort things out
  • 1. Families learn a great deal about the healthcare system and "fight" for the care their child needs
  • I wish it was easier for my parents
  • Why is it so confusing?
  • 2. Everyone hopes to "fix" the child.
  • There are lots of medical plans and opinions. 
  • Communication can be complicated.
  • Meanwhile....
  • 3. The child's episodes of serious illness and recovery shape the family's expectations
  • No-one wants to think or speak about the possibility that a child may die...
  • ... but children and their families have an awareness of their fragile situation 
  • This is too hard to accept.
  • 4. Introducing palliative care can be problematic ...
  • seen
  • 5. ... but "palliative care" provides a necessary counterbalance in ways that are both...
  • and
  • unseen
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