Findings 2
Storyboard Text
- It's so difficult to sort things out
- 1. Families learn a great deal about the healthcare system and "fight" for the care their child needs
- I wish it was easier for my parents
- Why is it so confusing?
- 2. Everyone hopes to "fix" the child.
- There are lots of medical plans and opinions.
- Communication can be complicated.
- Meanwhile....
- 3. The child's episodes of serious illness and recovery shape the family's expectations
- No-one wants to think or speak about the possibility that a child may die...
- ... but children and their families have an awareness of their fragile situation
- This is too hard to accept.
- 4. Introducing palliative care can be problematic ...
- seen
- 5. ... but "palliative care" provides a necessary counterbalance in ways that are both...
- and
- unseen
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