Findings story
Storyboard Text
- 1. A child develops a life-limiting or life-threatening condition ...
- ... and the family story is permanently changed
- 2. The child does not wish to be defined by their condition despite the impact it has on their life.
- The child and their family must quickly adapt. They meet a lot of people and begin a lifelong process of learning.
- My parents will decide.I want to see my friends
- We have so much to think about and sort out
- There will be one treatment, followed by another and another
- I need to call work
- 3. The child's condition and care become a family vocation.
- We must collect that medication
- 4. Fluctuations in the child's condition shape family expectations
- 5. Key personal relationships are developed with clinicians who "look after" the family
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