CHD app
Storyboard Text
- CHD 4 Me- Your tool to a great life with CHD
- Navigating site via one of 3 (needs to be determined by teen advisory panel) Mascot Famous person Choose your own adventure
- Catchy picture or graphic here -CHD doesn't define me -Loud and Proud -Take charge of your life
- Instructions and Help
- My data: Checklist Portable documents - how they work
- -Choose your own adventure format -Why is this app helpful -Pot. prize/certificate?
- My disease: educational info tailored to you specifically
- My Peeps: Mentorship program Social media -how they work
- Menu
- Before you continue
- Choose your own adventure
- CHD Academy - Educational modules
- Checklist
- Portable documents
- CHD Mentorship
- Need to join before you can continue
- Opening screen- need focus groups to determine what looks cool. or have a competition for teens with a prize for a pic?? focus groups on how best to flow through the app
- Tailor this App for you
- Disease type
- Specific simple, moderate or complex CHD
- what does this app do for me?
- CHD University
- Understanding my disease
- CHD emergencies and medical management
- List of options
- Understanding My Disease
- Am I cured?
- CHD social media
- Isolated small or repaired ASD/VSD; isolated AV or MV disease; ligated PDA; mild PS
- Intake assessment
- Demographics
- Assessment for TR/HL
- Disease knowledge assessment
- High, average, poor
- High/Medium/Low for TR; Short/Long versions for HL
- Each bubble is a functional button to move
- School/work and CHD
- My lifestyle
- Dealing with my CHD
- My future life with CHD
- Tailored to the individual patient diseases
- Moderate CHD
- Complex CHD
- Simple CHD
- TAPVR/PAPVR, Ao/LV fistula, Coarct, AVSD, Ebstein's, primum/sinus venosus ASD, mod/severe PS/PI, PDA, TOF, sub/supravalvar AS, VSD + abn
- Conduit, cyanotic CHD, Eisenmengers, Fontan, MV/TV/PA atresia, single Vent, TGA, Truncus, HTX, ccTGA, Pulm vasc obstructive dz
- CHD: Emergencies and Medical management
- Emergencies/When to go to the ER
- Finding an ACHD provider
- When to go to the cardiologist
- Dental Care
- Insurance
- Medications and side effects
- Finding an ACHD center
- Mental Health care
- School/Work and CHD
- School Challenges
- High School
- Scholastic Assistance
- Vocational training
- College
- Study abroad
- Dealing with my CHD
- Depression
- Dorm life
- How to talk to my friends about my CHD
- Stress/Anxiety
- Exercise
- Helping my parents let go/taking charge of my CHD
- Finding an adult CHD provider
- Remembering to take my medications
- These will be tailored based on the type of CHD, and what medications the patient is on
- My lifestyle
- Diet
- Lifelong care
- Tatoos/piercings
- This won't be tailored, but will mention different types of diseases
- My Future Life and CHD
- Family planning
- Post high school options
- ACHA
- Future job options
- This won't be tailored, except for exercise module
- Checklist - to do list before transitioning
- TR steps
- This will be tailored for exercise and birth control
- Alcohol
- Drugs
- Travel
- Exercise
- Sleep
- Relationships
- Birth Control
- Sex
- This won't be tailored except for future surgeries(?)
- Transplantation
- Genetics
- Lifelong care
- Future surgeries
- Non-cardiac specific care
- Understanding advanced directives
- What needs to be done prior to transition- based on intake assessment
- Self advocacy steps
- Knowledge steps
- Documentation steps
- Portable Documents
- Emergency care summary
- Transition/transfer summary
- Cardiac Diagram
- CHD mentorship
- ACHA Heart 2 Heart Big sib/little sib program
- CHD social media
- Instagram account
- Private social media forum
- Tailored to each patient- to be input by medical staff
- Advanced Directive
- Format to still be determined
- Not sure about platform/format for this
- Ask an MD?
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